The Life of Reilly Film

I was in a meeting this week to talk about turning The Life of Reilly into a screenplay.  At first it sounds impossible but the more I learn and investigate the more I think there is a really good chance of it becoming a reality.

I had no idea how much money would be required or what it would entail.  My good friend Steve who plays Ged Reilly’s Dad in the play has a Act2Cam film school and is well connected in the industry and Alison Stanley who wrote The Life of Reilly play already has the film mapped out in her mind and in her notebook.

To dangle the carrot to distributors etc there must be a 10 minute high quality pilot professionally made.  This involves bringing in scriptwriters, a producer, a director and casting.  The scene used for the pilot will most likely be the explosive showdown between Reilly’s Mam and the local council about school transport.  We’ve all been there and can relate. I think, not that i’m an expert, that it will in a snapshot capture the everyday stresses we face.  Handing you most precious belonging over to a complete stranger, trusting them to care for your child and your child not able to relate to you whether they like this person, whether they feel safe or threatened with them is the hardest thing i’ve had to do.

I wish people knew how we truly live.  A minefield of marital disagreements bore from stress over money and time misspent, from a cocktail of sleep deprivation and anxiety, from a fear for their future that gathers a permanent black cloud of uncertainty.  The battles we have, the books we must read, the dossiers of papers we amass hi-lighting every single thing your child is ‘failing’ at to reach an unnecessary milestone to achieve a vital tick in a box to notch up the score on the SEN school lottery.  All this when all we want to do is celebrate their achievements no matter how small.  All this just to get our children to the school and the education they have every right to.

People leave the play touched by what they have seen.  It changes their perspective about autism family dynamics and I like to hope that their new found realisations are shared with friends, families and acquaintances drumming down judgement from the lookers on.   A film on TV could do so much.  NT actors working alongside autistic actors and consultants is a dream. No flowering it up just telling it like it is in all its glorious sometimes heartbreaking detail.

Please if you can support this project, click the link below.  I trust the professionals who are already lining up to do  this pilot and hopefully full length film the justice and the air time it deserves.

https://www.crowdfunder.co.uk/the-life-of-reilly-film-pilot-1
https://www.facebook.com/plugins/video.php?href=https%3A%2F%2Fwww.facebook.com%2FBBCLN%2Fvideos%2F1538043862943362%2F&show_text=0&width=476

Jaycee’s Party

What a week! Since Shane’s post about Reilly went viral I have spent my time pretty much trying to keep up with the thousands of messages we have received.  Messages from all around the world all with the same story – that happened to us too and still is happening from child through to adult.

I am overwhelmed and heartbroken in equal measures about how much of an enormous problem inclusion is for our fantastic kids. In fact not just our kids, I have had messages from parents who’s kids are excluded by friends and family members, adults excluded because of race, religion, the LGBT community and many more.  We are all human and this just isn’t good enough.  Who are we to judge another?    

I received a message on Wednesday night on our way to London to talk to This Morning.

It was from a Mam who has had the same problem, she arranged a tea party for her beautiful little girl Jaycee which no one attended, they were having another in a place close to me with cakes and a magician and would we like to attend and we did attend yesterday!

IMG_2685.jpg

Because we were somewhere new and there were a lot of new faces it took him a little while to settle but once he did he was brilliant.  He did spend the first 10 minutes trying to open Jaycee’s presents but problem solved simply by moving them out of sight.

He skirted the edges as the children sat on the floor watching the magician (who was awesome by the way John Penman).  He didn’t join in the games directly but watched from the sidelines.  He loved the cake!!  He danced to gangnam style and shocked me by grabbing the microphone and becoming very vocal,  not words anyone would understand but for me I’ll take it and I loved it.

An amazing family with an incredible little girl.  Kindness costs nothing people and will enrich your life. Maybe more people should try it.

Thankyou Tanya & her family for making us so welcome. xx

The ramblings of a proud stressed father

The Life of Reilly

It’s been a while since I penned a post so welcome to the ramblings of a man on the edge. Readers who follow this blog regularly will of no doubt thought that poor Christine and possibly she doesn’t have much support; well I’d agree it is poor Christine and our circumstances dictate I have to work long hours to cover bills and allow the family to have a quality of life.

I enjoy my job to a degree and it actually keeps me sane having the routine of going to work and having the challenge of what my career brings BUT there isn’t much of a work life balance most months. I can almost hear people saying shut your gob and get on with it like parents the breadth of the place.

I hate the fact at times I come in from work and Reilly completely blanks me and Ellis…

View original post 569 more words

My Sons not Rainman

The Life of Reilly

I came across this book while browsing twitter one night while lying in bed worrying about the future as you do, well I do.  I sometimes lie for hours scrolling through #autistic #autism #meltdowns making myself feel better with other peoples frustrations or jubilations.

I liked the title immediately.  If you have an autistic child you will be familiar with the fact that a lot of people expect your child to have a remarkable magic talent.  “What’s his thing?” “I bet he’s good with numbers” are the common ones.

Not all autistic people are Savant’s. Savant’s are people who have incredible abilities usually falling into a few different categories to name a few:

Musical abilities – being able to playback perfectly a piece of music after hearing it only once.

Artistic abilities – Stephen Wiltshire a prime example his ability to remember skylines and reproduce them in drawings is breathtaking.

View original post 235 more words

Meltdown matters

The Life of Reilly

Ive talked about meltdowns before but just to make sure you fully understand and get it I thought I’d be a bit more descriptive so here goes mainly because tonight has been shit and difficult.

This would be a typical visit to the shopping centre and I cough unexpectedly for example while he’s pre-meltstrual.

Stage 1 – Pre-meltstrual  

This is bit where Reilly is just starting to show signs he’s not happy.  He becomes disinterested in EVERYTHING and growls at me and others.

Must be watched carefully for knocking things of shelves can’t afford to start bartering over breakages got to move fast.

Stage 2 – Can’t touch this

As if by magic he turns into a slippery little eel and its near impossible to keep hold of his hand, hood, arm, trousers etc.  For his own safety obviously you must hang on like a rodeo cowboy, he will run…

View original post 529 more words

Shoeless, bra-less 100 metre sprint 

The Life of Reilly

Yesterday Reilly’s taxi to school was late.  He’d been up since 4.30 and as always was ready sitting by the window watching for the bus.  5 minutes earlier Alex (thing 1) was leaving for work and asked if he could take my key, yes no problem don’t lock it  I’m not going anywhere and Reilly’s taxi will be here any minute.

This was a massive error on my part that will never be repeated. It left me wide open for escape attempts and general naughtiness. Was like an episode of 24 but we’ll call it 1 and a bit.

07.55    Reilly has taken up seat on the pouffe with remaining piece pain au chocolat from breakfast.

08.00    I’m wondering if there’s a lot of traffic today.

08.05.    Starting to get a bit edgey.  Reilly trying to take off shoes.

08.10     Debating whether to ring in a…

View original post 392 more words