The Life of Reilly short film

The trailer has landed and I couldn’t be happier!

If you want to see the full version then come along to the premiere on 13th June at Tyneside Cinema Buy Tickets  you wont be disappointed.  There will also be a talk from The Autistic Advocate, his blog posts blow my mind with his incredible insight on autism.

I loved being on set for this.  Charlie Price and Alison Stanley make for the most perfect Mother Son portrayal.  My mornings pretty much go like this. I feel a bit sorry for myself and Reilly watching it. The short film hi-lights the importance of routine and what can go wrong when you are failed by the system supposedly supporting you.

It’s tense, it’s real life.  You may see yourself in Alison’s character Joanne and you may see your child in Charlies incredible acting as Reilly.  Autistic actors (Scott Ritchie looks fetching in his dressing gown as the nosey neighbour) and crew were included in this film which is important to us.  Crissy Rock is an excellent taxi escort, her face speaks a 20thousands words, usually sweary,  along with her disinterested sidekick driver (Andy Mills), slightly bewildered by what shes been met with on an ordinary morning with an extraordinary family.

Loved being part of the Act2Cam experience.  I genuinely had no idea just how much work goes into producing a short film.

Music is North South Divide by The Longsands 🙂

 

Please  support us.  There’s so much more to do and we have a platform to educate and entertain to a much wider audience.  This is just the first step.

/

The Life of Reilly – Official Trailer from DoctorChas on Vimeo.`

 

Advertisements

Beach Life (of Reilly)

We’ve had a lovely day at the beach.  I made some observations about Reilly today.

  1. It doesn’t matter whether you are playing a beach based sport such as footy, cricket or rounders Reilly will sit on your goalpost, move your wickets and throw your ball in the sea.
  2. Reilly will enter any beach tent shade thing without consent and have a lie down.
  3. Reilly will claim any bucket and spade as his own despite small children’s wails of discontent. He gives no shits when I say Reilly that’s not yours, in-fact it encourages him to run faster.
  4. Reilly will join your BBQ without an invitation and will eat any bread type food you have kicking about, he is also partial of a slurp of random pop left unattended.
  5. Reilly will attempt to mount your body board or surf board regardless of whether you are on it or not.
  6. Reilly gives not one f@ck about any of it.  Oh to be that free.

Great day rounded off with some chips and an icecream.  Met some lovely  adults today who were intrigued by him.  Their kids and grandkids not so much haha.

Love him.

31948441_10155174392421557_7020936623059632128_o

 

Finding Reilly

What a difference the sunshine makes! Tonight when Reilly came home from school he typed Dory fish into my phone and  instead of looking at photographs of them I decided to take him along to the Blue Reef Aquarium at Tynemouth.

We’ve  drove along with the windows down and the sun beaming in, just perfect.  Reilly has never been to the aquarium before but I showed him photos of the outside and some of the exhibits and he was really excited.  First thing he did was go into the shop and purchase one of those fishing rods with the magnetic fish you throw in the bath, straight to the massive open tank in the foyer and started to rip it open, they were going in!!  Just stopped him in time.  Lady on reception was lovely though I must say.  There was no-one else there as we got there late in the afternoon so place to ourselves.  Happy days.

IMG_2845I expected him to wonder at the fishes and be intrigued.  He gave no shits about them whatsoever.  He did however enjoy watching the seals, I mean who wouldn’t.  I took some photographs while we were there and they look like he is in some kind of magic undersea utopia.  Beautiful greens and light.  I must go again a little better prepared with lenses etc and plan some photos properly.

IMG_2830 (2).JPG

The otters enclosure smelled worse than I imagine an otters pocket and we hastily ran through that bit.  Reilly and smells, particularly really strong ones is a no go.

All in all it was a lovely afternoon he showed me a picture of a sausage and an icecream on my phone so we left in search of a nearby chippy.  We kept driving, the sun brought hundreds to our beaut coast this afternoon and it was just amazing to see.  Ive not seen people headed to the beach complete with towels and windbreakers for decades.  I loved it.IMG_2829

Back at our local chippy we sat outside on the bench and Reilly listened to the ravey version of the Moonpig advert a million times.

Love the sun, love my sons, its a good day xx

IMG_2844.JPG

 

A right tit. Literally.

I’ve not written a post in a little while.  The charity is crazy busy and the life of Reilly play, film, plans are matching it with hours consumed at the minute which is good, I think but my head has also been elsewhere. Distracted and anxious.
For the last few months I’ve had a niggle in my right boob.   I have literally felt a right tit numerous times a day over the last few weeks, something feeling just not right. Its probably nothing. But as a mama probably isn’t enough so off I went to my GP with Shane in tow to talk about it. We shall see what becomes of it, probably nothing but I can’t afford to pee about.  Apparently because I’m under 50 and don’t have a definite lump I don’t meet the criteria but I didn’t leave until I had a referral.
Reilly’s last few nights of no sleep has given me the chance to do what I do best.  Catastrophise. There is no better time than 4am to get those horrific thoughts flowing.  I’m not the first and i’ll not be the last woman with the 4am fears. Its the first time I have ever seriously questioned my mortality, sat and talked to Shane about will’s and arrangements etc. Not comfy conversations but so necessary.
As a parent you want to be immortal, as a parent to a non verbal autistic child I need immortality and then some.  I actually played through the scenario in my head and cried at the thought of my boy not knowing where I was. Would he understand? He relies so heavily on me alone its unbearable to think about.  So when a GP says its rare for something to happen l reply with so is losing your brother at 32 to a ‘rare’ heart condition. I take no chances.
I am merely trying to cover my bases, second base in this instance because its the only thing to do.  So off I went this morning to the breast clinic to get checked.  Appointment came through quickly thankfully. Consultant agreed there was a difference and sent me for a mammogram and ultrasound straight away.  Jesus they are tense times those waiting rooms.  I am very happy to say no cancer. Dense, thicker area but not cancer.  The relief is huge.
Check your bristols lasses, don’t just share hearts on Facebook or say you’re wearing red knickers in the Bahamas or whatever the latest thing is on Facebook and if it doesn’t feel right get cracking.  I know several ladies early forties who have had breast cancer in the last year or so and to them and all the others facing breast cancer daily I send my love xx

Overnight insight

Anyone else crave a night away and then when they get there wish they were home?

In the last 7 days Reilly has been up at 4am 3 nights. Luckily for him he’s off school, not so much for me as I don’t have a chance to recoup any sleep.  I’ve been so excited to redeem some of my hotel points and just chill out with Shane. Was a rocky start after his 4am wake up and then falling asleep 1.30pm when we were due to leave at 2pm to drive to Durham.

Prior to the sleep he had an absolute meltdown – the reason for this is a new one and developed over then last couple of weeks.  He’s always hated coughing and sneezing for as far back as I remember he now hates …. Farting. Doesn’t matter what pitch, tone or whiff its not happening. Unfortunately for Reilly he has a brother who could singlehandedly power a wind farm.  He spent 45 minutes trying to fart. It sounds funny granted but look a little deeper, this is one of those times when I’d kill to know what he’s thinking. I feel so sad for him when he becomes that frustrated over something to us is so ridiculous but to him its enough to want to head-butt the wall, cry and scream. Its not ridiculous to him.

I let him sleep he was exhausted and decided our lunch out could wait and that we’d leave later when I knew he was OK.

We’ve been upgraded in the hotel to a suite which is lovely, the shops were closed by the time we got here so we went for a lovely Thai meal and then for a drink (teapot for me).

I’m in bed watching Bear Grylls eating a Fry’s cream (not Bear actually eating a Fry’s cream that would be shit telly) and having a cuppa. Shane’s fast asleep and my separation anxiety is raging. As much as I despair at the lack of sleep I miss him reversing his bum into my curled up legs and I miss putting my nose over his ears and smelling his hacky potato farm lugs and ratty hair. Sigh. Surely I’m not the only one?

So I shall continue with Bear and see who drinks their own pee then put on some mindfulness meditation and hope I sleep.

Love my boys. Roll on back to chaos in the morning x

Big thankyou to my Dad for looking after them tonight.

 

Yoga

A few weeks ago I signed up to a beginners yoga class.  I practise mindfulness daily and love it.  It helps ground me a little and puts the brakes on the internal chatter my mind partakes in constantly. Yoga seemed to be a natural progression.

Myself and Kelly got there for class at 6.30 all the teas had been prepared before I left, my dad was watching Reilly until Shane returned so happy days I was off to de-stress.  We decided to try Yoga Hens after a recommendation from a friend.  The room was dimly lit with candles, warm and was playing some ambient music.  Perfect.  The mats were lined up on the floor with little cushions and blankets, maybe I was going to get some kip as well this is just win win win.

My stress levels of late have been through the roof.  Half term saw the shoot for The Life of Reilly as well as our first charity heart screening weekend.  That’s a lot of juggling for the work life balance.  Ellis my 11 year old has been stressed to bits because of SATS, SATS for gods sake.  I said to him do what you can and that’s it.  Do not worry about results because I won’t.  He is also feeling the burn at the moment from Reilly and his superglue attachment to me and it’s highlighted the need that we need to work harder at our family dynamics as it is far too easy to just keep Reilly happy as we can and siblings can and do suffer.

I ran out of melatonin and had none for most of half term week.  You can never get it next day its always a few days so that meant that I also had little sleep.  I do all I can to try and keep stress at bay.  I’m eating better, i’m going to the gym, I meditate every night but I’m still incredibly anxious.

I was excited to start yoga but I made a fatal error.  I had beans on toast for my dinner before the class.  I have never ever in my life been that stressed.  I actually pretended I had cramp in my foot to get out of my downward facing dog because an upward facing fog was about to descend on the room.  Awful.  I was shaking with fear on letting one slip.  Next week there will be no beans or pop.

All in all I loved the experience, I’m incredibly not bendy to my disappointment I wanted to be all goddess like and graceful. Instead I fell off balance constantly but tried my best, I muttered Jesus Christ more times than I fell over and felt sorry for the lady behind me having a massive clothed moon in her vision for most of the class.

I’m hoping my path to enlightenment is a quick one and I can be all chill and wear lycra without fear.  Can’t wait until next week and see what we have in store.  No beans I promise.

finished-yoga-didnt-fart-once-29623-alt-27