I didn’t know this myself until recently, luckily I only work 2 days a week and my co-workers are very understanding and flexible but I wanted to share in case it helps another parent like me.
As many of you know, my Reilly has complex needs (he’s autistic, has a learning disability, a hole in his heart etc and like so many of us, balancing work and caring can be impossible.
What I didn’t realise is that we actually have a legal right to something called Carer’s Leave. Honestly never heard of it until not long ago. It was introduced in April 2024 in the Carer’s Leave Act.
Up to 1 week unpaid leave per year
You can take it flexibly (days or even half days)
Your employer can’t refuse it (only delay if absolutely necessary)
You don’t need to provide medical evidence
There’s also Parental Leave
• Up to 18 weeks per child (until they’re 18)
• Usually up to 4 weeks per year
• Unpaid
Time off for Dependants – For emergencies like school issues or care falling through.
I know how utterly overwhelming life can be when you’re caring for a child with additional needs. The amount of shifts Shane has lost for hospital appointments, when I’m ill and can’t look after Reilly or when I can’t manage him is ridiculous.

