Yesterday I decided to just spend some quality time with Reilly letting him lead the way and seeing where it took us. It took us to the skate park on a beautiful sunny day. My mind was still buzzing from watching The Life of Reilly the night before so a welcome bit of time out to process it all. The feedback we have received from autistic people, families of autistic people, teachers, SENCOs, theatre goers in general is outstanding so there WILL be more showings of The Life of Reilly and I think it could be groundbreaking for public understanding. Let’s hope so.
I always take my camera along on sunny days and this morning I sat down to edit my photographs while watching Richard & Jaco – Life with autism. I stopped editing photos and became engrossed after 2 minutes. Richards fears resonated with me as a parent of an autistic child, my biggest fear is what if I die closely followed by how will he cope as an adult. I think one of my most popular posts was Grim. It still keeps me awake at night and I can’t imagine it will stop anytime soon. Please give it a watch – education, stimming, employment, independence, fears and love. It’s fantastic. Richard & Jaco – Life with autism (will be available to watch again soon will post the link).
Love this boy and how he comes at life with this fierce yet vulnerable nature. Not so much love for piggy back home with scooter, shopping, camera bag a bottle of pop and two chip butties ;).
Reilly’s had a great day! I’m so pleased as I get so nervous about how he will be with others out and about. He’s been on about 7 buses all over North Tyneside with his grandad and his old folks bus pass totalling 3.5 hours travelling time. He’s becoming a bit of a celebrity and was recognised again while out and about.
Meanwhile we have been for a meeting this morning to sign the papers to get Alphabetically Autistic up and running. It’s an exciting time I feel like i’m helping to build something very positive that will help parents, grandparents and siblings along the way.
We have added some more features to Alphabetically Autistic which includes a Dad’s only meeting group and also photography sessions.
Did you know I’m nifty with a camera and have shot many weddings? I once took Reilly along to my friend and amazing photographer’s studio Richard Hanley Photography to see if it was possible to get some shots of Reilly. I’ve assisted Richard on quite a few weddings and love his work, sadly he doesn’t do childrens shoots anymore but if you’re getting married he’s your man! We did get some shots but by christ it was hard work, Reilly wanted to wander off, not look at the camera etc I felt under pressure and that was with a friend who wasn’t judgmental, not that Richard minded one bit that Reilly was a little difficult but I did, I was stressed to bits. So I get how uncomfortable parents can feel taking their children to studios. I don’t care if there’s stimming, crying, chewing or little accidents and I don’t care that it may take an hour to produce 3 shots.
How adorable are the 2 photographs of the little man on this post shot by Richard, Reilly’s always been cute as a button. Ps that’s not my arm in the photo below 😂
Great things to come from Alphabetically Autistic keep your eyes peeled.