Mortality

In the quiet moments of the night or morning in our case 👀 and my thoughts are my only company, I find myself grappling with questions that have no answers long after Reilly has gone to sleep. I’m mentally exhausted and not ashamed to admit it.

The tiniest of health scares can send me into a tailspin that questions my own mortality, im fine by the way, a headache and Dr Google can trigger this but even without that the thought of leaving behind a child/adult who requires extra care and support is completely overwhelming.

The fear of who will step in to fill the role of caregiver and advocate, ensuring that Reilly continues to receive the love and support he needs. It’s constant treading water ensuring Reillys wellbeing is met while the weight and pressure of uncertainty bears down on what the future holds.

I find solace knowing that I’m not alone, navigating the choppy waters of SEN parenting together, drawing strength from each other’s stories and experiences. One lunch date with some of the Mamas is an absolute tonic for me.

So what do we do and how do we prepare? Independence, happiness and learning to trust others are the only things I can focus on. I will continue to educate others in the hopes that they be world works on becoming more accepting of neurodiversty.

Are you like me and try and push back on these thoughts or are you putting steps in place? I’d love to hear your thoughts 💜